Winter workhorse + Health update

[ronk]

I can fully understand what a few kind words mean.
When was in hospital a while back, those texts did wonders for moral!

It’s always good to know someone is in your corner

[Pondrew]

This Z4 forum is truly a family

Yes it is. We bicker all the time and are constantly disagreeing. Doesn't get anymore like a family IME!

[pvr]

Absolutely

[Mr Tidy]

So sorry to see how your trip went horribly wrong Sean, but at least you managed to get home which I'm sure is where you would choose to be.

I may have said it before but your positive attitude is a real inspiration so keep it up and as always I wish you all the best.

This thread must be one of the few where there hasn't been a disagreement!

[Pondrew]

This thread must be one of the few where there hasn't been a disagreement!

No it isn't!

[Mr Tidy]

Oh yes it is!

[N4LLY]

Opdate:

X3:
Connor has got the V5 back and in his name, so all good there.
Car has been proved an absolute bargain for a workhorse, has done exactly what i wanted and a lot more

Z4:
Had that blast out at the weekend and not been used since. Health not allowing me to take out
Blue badge has been approved and i should arrive within 10 days I hope it comes with a user manual as i have no idea

Health:
Has gone downhill the last week - 10 days
Nurse Hailey from Hospice cam yesterday. Asked if i could book into the hospice for 2 weeks for pain releif management and on site closer care.
I said no and rattled off 100 reaasons why not.
They are now arrangeing for a Hospital bed to be delivered to me
I have to go to Hospice this morning to meet with Nurse Claire. I hope they can sort out a
pain releif and sleep regime as soon as possible.

Palliative care waqs supposed to be all about comfort and quality of life. This is not working out for me at the moment

Later's

[pvr]

Health:

Blue badge summary: Council car parks free to use, private ones you still need to pay even if in a disabled space. Single yellow is all good as long as you don't obstruct traffic. There will always be a sign whether you need to pay. You don't need to park in a disabled space in a council car park to not have to pay, just display the badge. Shop disabled spaces obvious.

Some parking locations you need a parking disc as disabled is for x number of hours only, but that is rare.

I had to explain it all to my mother in law and that is the summary that covers the vast majority of cases.

[ronk]

But don’t worry - they come with an instruction booklet and a clock card.
It’s important that you are with the car when it’s being used.

[GJ1]

Sean, I'm a long term lurker and been following this thread from start. Like others have said, I wasn't really sure what to say so haven't posted before. I'm sure there are many others who are in the shadows and wishing you well. Your posts have elicited a range of emotions from sadness and shock to inspiration and laughter. Wishing you and your family all the best.

[N4LLY]

pvr, ronk, Thanks guy's

GJ1, Very kind words. I thank you, cheers

Meeting this morning with Nurse Claire was fairly routine. More painkillers coming to experiment with, inc. liquid parracetamol, which is can mix with Oxycodone apparently Sleeping tablets seem to be a taboo subject, must kill this pain problem first

Melanie and Connor made room for Hospital bed to slot in. Bed is arriving tomorrow.

Melanie caught me doing the accounts online with the bank

IMG-20240516-WA0005.jpg (175.82 KiB) Viewed 158 times

[Nanu]

Sleeping tablets seem to be a taboo subject, must kill this pain problem first

Apologies if I am being ignorant but if your asleep you wont feel pain. A good few hours sleep would appear to be essential so why no sleeping pills?

[N4LLY]

Nanu, I honestly do not know why, have requested sleeping aids several times, one of the care nurses has put in a request
but that will need approval from a GP or cancer Doctor. Watch this space. It's the same for steroids, whilst on Chemo' i was issued a couple of days worth but that's it. I have asked if could be added to prescription but "no" . Asked again this morning but Nurse Claire quoted my bleed incidents
recently as to why not being issued.

Maybe the Forum Dr. will be along shortly to explain ?

[BMWZ4MC]

Morning Sean,

Short courses of corticosteroids will help your appetite, help you feel a little more energised and help you cope with inflammatory insults to your body like chemo / radiotherapy etc, but avoiding long term use of steroids makes sense because they have pretty potent side effects including:
- suppressing your immune system (likely already suppressed) making you more vulnerable to opportunistic infections;
- fluid retention and hypertension, which may have knock-on effects on your heart, especially if it’s already been damaged by chemo etc;
- depression and sleep disturbance;
- muscle wasting and weakness;
- diabetes;
- gastric ulcers;
- thin, fragile skin / mucous membranes, skin ulceration, poor wound healing and fragile blood vessel walls leading to easy bruising, spontaneous bleeding, and wounds that don’t heal. All of these are significant concerns for you since you’re experiencing spontaneous bleeds already.

I’m not sure why there’s a reluctance to prescribe sleeping tablets. It seems to me that your daytime somnolence (see pic above) might improve if you slept at night!

[ronk]

My wife is on 60mg now, gradually reducing, is suffering some of those side effects.